On the occasion of World Sickle Cell Awareness Day, the D/o Empowerment of Persons with Disabilities (DEPwD), M/o Social Justice and Empowerment, through its National Institutes and Composite Regional Centers (CRCs) across the country, organized extensive awareness programmes, lectures, seminars and webinars. The day, observed every year on 19^th June, is a significant global health observance aimed at raising awareness about Sickle Cell Disease (SCD). The theme of World Sickle Cell Day 2025 is, ‘Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy’.

Sickle Cell Disease is a chronic, hereditary blood disorder, commonly found in tribal populations, that affects millions globally. Recognized by the United Nations, this day reinforces global efforts for early diagnosis, effective treatment, and creating supportive community environments for those affected by the disease.

Below is a summary of key programmes organized by various National Institutes and CRCs under the DEPwD:

The National Institute for Loco motor Disabilities (NILD), Kolkata organized an awareness programme at NRS Medical College, Kolkata, for patients and medical professionals. Experts shared insights on the symptoms, diagnosis, and treatment of the disease.

The National Institute for Empowerment of Persons with Multiple Disabilities (NIEPMD), Chennai held an awareness programme for the general public at Chengalpattu, focusing on disease management and the role of communities.

The Swami Vivekanand National Institute of Rehabilitation Training and Research (SVNIRTAR), Cuttack conducted a special programme highlighting the importance of early detection, effective management, and community support for individuals with SCD.

The National Institute for the Empowerment of Persons with Intellectual Disabilities (NIEPID), Secunderabad organized an awareness session for parents, students, and field professionals at its auditorium.

The CRC Tripura organized an awareness program at Nutan Nagar Girls Higher Secondary School, Agartala. The CRC Gorakhpur, through its Cross-Disability Early Intervention Centre (CDEIC), conducted a special seminar for children and their parents, focusing on the complexities of SCD, the importance of early diagnosis, and appropriate treatment. Additionally, CRC Nagpur conducted an online webinar to mark the occasion.

In addition, other national institutes and CRCs under the Department also conducted various awareness initiatives at the local level in observance of World Sickle Cell Day. These collective efforts aim to raise awareness about Sickle Cell Disease, empower communities, ensure timely diagnosis, and provide adequate support to affected families across the country.

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VM

Sickle Press Release